Digital Resources for Survivorship
UCSF
UCSF Carol Franc Buck Breast Care Center: www.ucsfbreastcarecenter.org
UCSF Events Calendar: http://calendar.ucsf.edu/
UCSF Medical Center: http://www.ucsfhealth.org/
UCSF Women's Health Resource Center: http://www.whrc.ucsf.edu/whrc/
Ida & Joseph Friend Cancer Resource Center at UCSF: 415-885-3693 or http://cancer.ucsf.edu/crc
- Free lending library
- Take-home pamphlets
- Newsletter
- Calendar of programs
- Database of resources
- Access to oncology social worker
UCSF Patient Health Library: 415-885-7285 or http://mountzion.ucsfmedicalcenter.org/phl
Podcast @ UCSF: https://cit.ucsf.edu/podcast/
General Information, Workshops, Peer Support
CancerCare: 1-800-813-4673 in English and Spanish, www.cancercare.org
- Learn new ways to cope with your cancer diagnosis
- Explore and manage feelings which may include sadness or anxiety
- Speak with your children about your cancer
- Find help with financial challenges
- Improve communications with your health care team
- Connect with resources
Cancer.net: www.cancer.net
- Next steps after cancer treatment
- Late effects of treatment
- Survivor care plan
- Survivor stories
- SurvivorCare program, to request help dealing with your cancer experience
- Counseling and referrals to local resources
- Help addressing financial and insurance concerns
- Clinical trials matching to new treatments in development
Living Beyond Breast Cancer: 1-888-753-LBBC or www.lbbc.org A national non-profit education and support organization dedicated to empowering all women affected by breast cancer to live as long as possible with the best quality of life. Services include:
- Conferences
- Teleconferences
- Networking programs
- Quarterly newsletters
- Survivors' Helpline volunteers offer peer support, information and hope in a confidential setting.
- Research studies
- Resources
- Calendar
National Coalition for Cancer Survivorship: 1-877-NCCS-YES or www.canceradvocacy.org A survivor-led cancer advocacy organization:
- Advocating for quality cancer care
- Empowering cancer survivors
- National advocacy and patient education are their priorities
National LGBT Cancer Network: www.cancer-network.org The National LGBT Cancer Network works to improve the lives of LGBT cancer survivors and those at risk by:
- Educating the LGBT community about our increased cancer risks and the importance of screening and early detection;
- Training health care providers to offer more culturally-competent, safe and welcoming care; and
- Advocating for LGBT survivors in mainstream cancer organizations, the media and research.
Breast Cancer
Susan G. Komen For the Cure: 1-877-465-6636 (English and Spanish) or ww5.komen.org
- Calendar of breast cancer events
- Hosts "talk back", a question and answer forum
- Helpline for survivors and families
Young Survivor's Coalition: www.youngsurvival.org Information specifically for women diagnosed with breast cancer under 40 years of age.
- Programs
- Research
- Online discussion
- Events
Zero Breast Cancer: http://www.zerobreastcancer.org/ A group focused on environmental factors and the role they play in the development of breast cancer.
Fertility
Fertile Hope: www.fertilehope.org Reproductive information, support and hope to cancer patients and survivors whose medical treatments present the risk of infertility.
- Comprehensive information
- Referral guide
- Support
Clinical Trials
BreastCancerTrials.org: www.breastcancertrials.org
- Learn about the benefits of taking part in a clinical trial, and the questions to ask before you do.
- Matching service to find trials that might be right for you.
- Preview all trials by browsing our listings.
Complementary Medicine
Charlotte Maxwell Clinic, Oakland and San Francisco: 510-601-7660 (intake for both clinics) or www.charlottemaxwell.org Complementary treatments (acupuncture, massage, Chinese and Western herbs, homeopathy, massage therapy, and therapeutic imagery) provided to low-income/underserved women with breast cancer, free or sliding-scale.
Osher Center at UCSF: 415-353-7700 or http://www.osher.ucsf.edu
- Complementary treatment provided on a fee basis
- Some services covered by insurance
- Financial assistance application available
- Some free workshops such as weekly relaxation/meditation class every Monday
Health Insurance
Cancer Advocacy: http://www.canceradvocacy.org/resources/publications/insurance.pdf
- Types of health insurance
- Your rights and their limits
- Using your health coverage
- Where to find help and information
Resource Centers
Women's Cancer Resource Center, Oakland CA: 510-420-7900 or www.wcrc.org
- Education
- Support groups
- Cultural and healing arts workshops
- Financial assistance
Breast Cancer Connections, Palo Alto, CA: 650- 326-6686 or www.bcconnections.org
- Support groups
- Practical help
- Buddy program
- Personalized research
- Screening and diagnostics
- Complementary therapies
- Counseling
- Friends and family
- Workshops
Cancer Support Community, Walnut Creek, CA: 925-933-0107 or www.twc-bayarea.org Support and education programs for those newly diagnosed through survivorship, for patients and families.
Sexuality and Intimacy
Sueann Mark, Ph.D, Clinical Sexologist: 415-573-7395 or www.drsueannmark.com Dr. Mark specializes in the unique needs of women with breast cancer, from newly diagnosed to long-term survivors. A breast cancer survivor herself, offering her expertise in human sexuality and specifically the sexual impact of cancer treatments.
Symptom Management
National Lymphedema Network: 510-208-3110 or www.lymphnet.org
Magazines and Journals covering Survivorship
American Journal of Nursing: http://journals.lww.com/ajnonline
CR magazine: www.crmagazine.org
Cure Today: www.curetoday.com
MAMM magazine: www.mamm.com
- Articles about wellness and other survivorship topics
- Event calendar
- Support group listing
Suggested Books
100 Questions & Answers About Life After Cancer: A Survivor' Guide, by Page Tolbert and Penny Damaskos
Living Beyond Breast Cancer: A Survivor's Guide For When Treatment Ends and The Rest of Your Life Begins, by Maris C. Weiss M.D. and Ellen Weiss
After Breast Cancer: Answers to the Questions You're Afraid to Ask, by Musa Mayer
