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Hello, As breast cancer patient advocates, we understand how confusing it is to be diagnosed with breast cancer and be faced with the many options regarding treatment. You may also have been asked to participate in a research study. Because of this, we want to share with you how new advances for breast cancer are developed and how you can take part in the process. Virtually all of the improvements in cancer care have occurred because of something called a "clinical trial." The term "clinical trial" may sound a bit intimidating, but it is simply a research study that carefully tests new ways to prevent, diagnose, or treat diseases like breast cancer. These studies are critical because there is still so much that isn't known about this disease. There are many active research areas in breast cancer. In the table below, we list several of them and give examples of specific study topics for each:
There are advantages and disadvantages to participating in a clinical trial. Advantages might include receiving treatment that is not commercially available, receiving more thorough follow-up care, or experiencing treatment that is given in a more effective way than with standard therapies. Disadvantages might include more doctor visits, additional tests, or increased costs (although such costs are usually covered by the trial budget or by insurance). We believe it is important for you to understand all of your options as you decide upon a treatment plan. UCSF shares this belief and is working hard to provide options for each of their breast cancer patients through Decision Services and other tools aimed to personalize treatment. If you are interested in a clinical trial, go to BreastCancerTrials.org to find out if there is a clinical trial that matches you. We also invite you to learn more about cancer research, and how you can help. To find out about patient research advocacy, contact the UCSF Breast SPORE Advocacy program representative, Sarah Goins. Wishing you the best, Peggy Devine
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